What happens when you give three Los Angeles residents in wheelchairs video cameras to document their daily lives? A genius film providing caregivers, policy makers, health care professionals—and everyone else—the opportunity to see what the world is like through their eyes, that’s what!
Rolling is a patient-centered documentary by Dr. Gretchen Berland that offers an honest, eye-opening look at the daily challenges of living with limited mobility. LA residents Galen Buckwalter, Ernie Wallengren, and Vicki Elman spent nearly two years capturing 212 hours of footage on cameras mounted to their chairs.
It’s often easy to overlook the “small” challenges in our built environments – a raised surface outside the front door, an elevator under maintenance in a subway station, or a crumbling sidewalk on the way to your favourite café. While unconsidered by many, for others these are daily frustrations. I can’t imagine how exhausting – physically and emotionally – it would be to have to deal with this *&^$%#*@& every day! What is it that makes people facing these or other challenges on a daily basis get up every day and not only get on with their day but flourish?
In her book “Grit: The Power of Passion and Perseverance,” Angela Duckworth explains the secret to outstanding achievement, and it’s not talent (like you might expect). Instead, she describes the secret to success as passionate persistence. I couldn’t help but notice parallels between grit and the three individuals in Rolling. All three clearly and repeatedly demonstrate the grit that Duckworth describes as they passionately persist and resist the social messaging and identities assigned to them.
I hate uncomfortable clothing and have never understood the ‘hurts to be beautiful’ adage. Anything (pants, underpants, socks, whatever) I put on that bunches, creeps, or stretches too tight during my usual day of biking, walking, playing, and working will quickly find its way to the local thrift store!
Much of Western fashion tends to be designed for standing bodies without much consideration for people using mobility devices like wheelchairs and often favours form over function and comfort, too. I have to admit that in the past I didn’t think about how most of the clothing sold today would be SO uncomfortable for people using wheelchairs and other mobility devices. I should have figured this out sooner, as I know that certain clothes do not translate well when I ride my bike – shirts that are too short and low cut pants mean my back ‘bits’ are routinely exposed to the elements!
This is why I’ve been so inspired by Izzy Camilleri’s work, particularly her “Designs for Sitting”.
I saw her show “Fashion Follows Form: Designs for Sitting,” at the ROM last summer and was blown away by how beautiful–and sexy–the clothing is. It really inspired me to think critically about the relationship between fashion, mobility, and accessibility. It’s not surprising at all that her exhibit won The Richard Martin Exhibition Award by unanimous decision!
Others tackling this issue include Gary Markle and Glen Hougan from NSCAD University who is working on a clothing line that meets the needs of older people as well as those with mobility challenges. The line is called ‘Worn Well’ and is concerned with designing for dignity for a population often unconsidered in the fashion market. Read more about the clothing line project here.
Whether you’ve got a bike, scooter, walker or wheelchair, duct tape is a seriously cheap and fast way to personalize any ride. No longer limited to that traditional grey, this strong adhesive product now comes in like a bazillion varieties of colours and sizes!
Duck Tape has leveraged the versatility of their brand to meet the needs of a growing number of DIY’s (do-it-yourselfers). They have a massive selection for people to choose from for repairs, crafts, labeling and decorating purposes. You can buy transparent tints, mini-rolls, sheets, and specialty duct tape—even scented and glow-in-the-dark products now exist!
Using duct tape as a tool for personalization is both accessible and affordable and the fact that is so durable and waterproof is an added bonus. I recently came across these sweet rides that were decorated with duct tape – check them out!
I pulled up beside this ride the other day and she explained her use of Duck Tape: “I started by fixing my seat and then loved it so much just kept taping! Hides the rust too!”
Saw this camouflage scooter in front of me at the border. The guy inside told me through his open window that he thinks the tape is a great improvement “I’ve always been an outdoor guy.”
It is estimated that 7,500 cyclists are seriously injured in Canada each year and one-third of cyclist deaths occur during the night. What if there was a way to make yourself more visible on the road? Volvo’s got you covered!
Volvo recently released a video promoting their new product – LifePaint – a unique reflective safety spray designed to make it hard to miss riders on the road at night. This spray is invisible during the day and glows brightly in the glare of car headlights at night making the invisible, visible. The added bonus is that it washes off, doesn’t alter fabric colours or surfaces, and lasts up to one week after application.
Cyclists aren’t the only ones in danger on the road. LifePaint can be used on ANY mobility device including kids scooters, skateboards, motorized scooters, and wheelchairs. The goal is to make road safety accessible for everyone – and this seems like a really fun way to do that! You can buy this product at any Volvo Cars retailer.
Imagine arriving at a location labeled as ‘accessible’, only to discover there’s a step or ridge leading to the front door obstructing your entry. Unfortunately, this situation is all too familiar to people with disabilities.
Tackling this problem head on is Ryerson student Maayan Ziv.
Watch her interview with GlobalTV to see her talk about this great initiative by clicking this photo.
Maayan used her expertise in Digital Media to create an app that allows users to browse an interactive map to discover accessible places around the world. The mobile app, AccessNow, uses crowdsourcing (like Wikipedia) to collect information and rate locations based on people’s accessibility requirements. Locations are marked with colour-coded pins to show the degree of accessibility ranging from accessible, partially accessible, patio access only, and not accessible at all.
Maayan is passionate about creating a more accessible world and this app is a huge step in the right direction!
In 2013 I wrote a post about personalized prosthetics, where occupational therapist Christina Stephens designed and built her own Lego leg. Lego’s most recent contribution to the toy world is making a huge impact around the globe.
At the end of January, Lego unveiled its first minifigure using a mobility device at the Nuremberg toy fair. The one inch tall plastic figure is a part of a “Fun in the Park” set, which will be available for purchase in June, and is the first of its kind (despite having produced approximately 600 billion Lego pieces to date).
Though only one inch tall, this minifigure sends a commanding message of inclusion and has the power to influence our cultural perceptions, which is why Lego fans, parents, and disability groups are celebrating. It may have taken over 60 years to get here and he’s just a little dude, still this represents something much BIGGER!
Read more here.
Meet Justin Anderson.
This Iraq war veteran is giving back to his community in an incredible way. After coming up with the clever idea of attaching a snow blade onto his wheelchair, Justin hit the nearby streets to help make the sidewalks safer for his neighbourhood during the winter.
“I had about half a dozen people stop me and ask if they could take a picture because they had never seen … a chair like this before.”
What’s particularly awesome about his pimped out ride is the way that it challenges other people’s typical perceptions of individuals using mobility aids and devices. Instead of Justin being dependent on others, the members of his community become dependent on him to perform this service. Way to go!
“I don’t dress to be stared at. I dress for myself.” – Iris Apfel
Meet Iris Apfel.
Iris is a highly successful and eccentric 94-year-young American businesswoman, interior designer, and fashion icon who has recently gained celebrity fame. Iris is also the founder of Old World Weavers, a textile company that she launched with her late husband Carl Apfel. Through their textile business, they travelled around the world and participated in unique design restoration processes, including work on the White House for several presidents. Her bold approach to layering big jewelry and her oversized round glasses make a lasting iconic impression that landed her a star role in a documentary by Albert Maysles about her incredible life and career.
I recently watched this delightful documentary – Iris – which included several segments of Iris using mobility devices including a cane, walker and wheelchair.
What struck me immediately when viewing these segments was the stark contrast between Iris’s ‘over the top’ accessorizing – on herself, her house and even her husband and the mobility aids that were left completely untouched! Not a splash of colour, not a jewel or bead, nothing… I have to admit I was disappointed… and couldn’t help thinking, “REALLY?! IRIS?!! You of all the people would have the know how to “pimp your ride”!
Unconsidered OR Unacceptable?
I believe one of two things are going on here. Either,
- These devices are ‘unconsidered’ – i.e., it doesn’t occur to Iris (or those around her) that it’s even an option to accessorize these devices…or, and I imagine more likely…
- The devices are ‘unacceptable’ – meaning Iris (like others) just can’t reconcile herself with these medicalized impersonal machines and as such wants to distance herself from them. The way these devices look, feel and are understood in our culture in other words, is completely unacceptable to Iris and as such she does not want them to – in any way- be a part of her.
“There’s no how-to road map to style. It’s about self-expression and, above all, attitude.” – Iris Apfel
Technological innovation and advancement is helping us to re-imagine assistive devices in our everyday lives as new designs challenging previous limitations in amazing ways!
In 2013, a focus group of seven mechanical engineers and one electrical engineer from the Swiss Federal Institute of Technology (ETH) in Zurich, Switzerland teamed up with two industrial designers from Industrial Design at Zurich University of the Arts to create a wheelchair unlike any other. Adopting Beni Winter’s idea of creating a robot that climbed stairs, the team worked together to create a wheelchair that could do the same thing.
Electrically powered and strategically designed, this incredible piece of technology can climb stairs and possesses the ability to balance on two wheels to keep the occupant level at all times. VERY cool! See it for yourself!
Another great example of innovative technology that challenges us to re-imagine the scopes of assistive devices is Patrick Dougherty’s invention known as the “FreeWheel“. Slightly less complicated than the previous example, the FreeWheel is an attachment that makes navigating certain terrains substantially easier in a wheelchair. The foldable, removable wheel attachment significantly expands the user’s scope of movement, allowing them to travel through gravel, over grass, and even persevere through the snowy sidewalks during the winter. The FreeWheel is helping re-define what it means to live an active life in a wheelchair.
These are great innovations however research and innovation costs money, and high price tags can pose a huge obstacle for a lot of people. Which brings us back to the real barrier for people with disabilities ~ society’s inability and unwillingness to provide fully accessible environments for all citizens.
Every two years, a major contemporary art exhibition – The Venice Biennale – takes place in Venice, Italy with specific events for art, contemporary dance, architecture, cinema and theatre. At this year’s exhibition, one artist’s extraordinary work re-created a traditional assistive device using razor blades. Tayeba Begum Lipi, born in Gaibandha, Bangladesh, is known for creating paintings, prints, videos, and sculptures that articulate themes of female marginality and the female body. While many of her sculptural works purposefully use unexpected materials to speak primarily to the violence facing women in Bangladesh, her razor blade wheelchairs showcased at this year’s Biennale inspire an view on disability.
This piece – simultaneously beautiful and dangerous – reflects the challenges those with disabilities face daily in a world that continues to embrace ableist assumptions and beliefs. Looking at the detail of the piece I feel its message… when our society marginalizes people with disabilities, it perpetuates a kind of slow violence that will ultimately, destroy us all ~ as Emma Lazarus explains “Until we are all free, none of us are free”.